Lewis is amazing us everday with how strong his little body is. Today was a pretty good day. He is finally weaned off of Nitric. The nitric opens up the pulmonary veins in the lungs. They tried to wean him off this a few days ago but once they turned it off his body didnt tolerate it. So they came to the conclusion that he has something called pulmonary hypertension. Pulmonary hypertension is high blood pressure in the vessels that carry blood from the heart to the lungs. So since they took him off the nitric they had to give him a different drug & the miracle drug is Viagra. Wierd i know but they say it does almost the same thing as the nitric.... They are also telling us he will go home on this medication. I have a feeling Lewis is going to be very high maintenance once we get him home... they also say that most heart babies go home with feeding tubes & if they come out ill have to put it back in. I can barely watch the nurses put them in so i better start getting used to it. Also today they took out his catheter since he was peeing soo good. Alvin was happy about that!! so slowly we are getting rid of machines & tubes. Of course we still have a LONG way to go but at least he is making progress. Also the nurses are telling us his ventilator may come out by thursday if we are lucky. they are letting him wake up more so he will start breathing on his own. I cant wait to get that thing out... i havent heard a peep from my baby for almost a week. i cant wait to hear his little cry again. So that is his next big hurdle! to get that ventilator out & keep it out!
Also i can never say this enough.... Thanks for praying for Lewis & us. We have felt so much love & support thru all this, even from people who barely even know us. Your prayers are much appreciated!!! We love you all!
Here are a few pics from today. They took off his dressing on his chest yesterday & it looked soo much better than i thought it would. I cant say it enough how cute this little guy is.. i cant wait to kiss & squeeze on him.
Also he is finally getting fed some of my breastmilk. YEEPEE!!! all my hard work is finally paying off....he is up to 7cc an hour & they will try to get him to 10cc an hour so hopefully he will be able to tolerate it well so he can start gaining some weight.