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Saturday, March 7, 2009

Update on Lewis

Baby Lewis's sternum & chest are finally closed. The surgeon came in around 8 this morning & closed him all up. We just pray his little heart will tolerate the sternum being closed since it can put pressure on his heart & cause bleeding. His blood pressure is high right now so they are trying to bring that down & he still has alot of fluid he needs to get rid of so we are going to work on that today.
Its been much easier to look at him now that he doesnt have an open chest. He is still such a beautiful baby even with all the cords & tape all over him... I just cant wait to kiss & hold my baby again. Its amazing the amount of LOVE i have for him & just wish i could take all the pain away. Im just happy he wont ever remember any of this.
All the doctors have been soo impressed with how lewis is doing considering how complicated the surgery was & how many things were wrong with his heart. Our prayers have truly been answered since they really thought he wouldnt make it past the first 72 hours after his surgery. It is truly a miracle that Lewis is still with us. We had a cardiologist come in the day after surgery to do an echo & he said the repair on his heart looks really good. He said "I was expecting the worst considering how complicated & long the surgery was but his heart is actually looking pretty good." That just made us sooo happy to hear him say that. It gives us Hope! Hope that he will keep going in the right direction... We have learned to take it one day at a time & have been so thankful for all the family & friends that have stopped by to make the time go by faster. We have had so much Love & support given to us. It has really made this difficult trial alot easier for us just knowing how many people are praying for Lewis & us. People who dont even know us are praying for our baby & that gives me such comfort. I know our Heavenly Father has heard & answered our prayers. I just pray everyday that i can learn what i need to learn from this trial he has given our family. I try to remind myself everyday that someday i will look back at all this & be grateful for this trial.

Here is a pic of Lewis today. He still is swollen but is much better than he was yesterday & his chest is closed so that makes him look much better...

8 comments:

  1. Im so happy to hear everything went well and they were able to close him up this morning. He is such a fighter and still such a cutie. I love you and remember to let me know if you need anything. Love you - Jamilyn

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  2. We are so happy to hear that things went well this morning and that he is doing so good. What a tough little man. We are hoping to get down there soon to finally meet him and visit with you guys. We love you three and continue to keep you in our thoughts and prayers.

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  3. Alvin and Jessica, we are just finding out about your precious little guy. He is absolutely beautiful! Alvin, I am quite certain your son has the strength and determination of his father and he won't give up! You are all in our prayers and we are here for you if you need ANYTHING! Stay strong, love each other and GOD bless. With love, Wayne and Amy Dillon

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  4. We pray for you every prayer and have fasted for all of you too. I know Heavenly Father loves you both and little Lewis...Thank goodness we have the gospel! We love you guys!

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  5. So glad everything went well this morning. It was so good to see you guys again yesterday. Hopefully you won't get sick of seeing us. What a little fighter Lewie is. We love you!!!

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  6. So glad to read that Lewis is doing better than expected! We hope things continue to go well. We continue to pray for all three of you!

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  7. This is Megan (Gibbons) Flinders and I just heard about little Lewis today in an email from my grandma (Donna). Our thoughts and prayers are with Lewis and your family. Lewis is a beautiful baby and we pray he continues to fight this!!

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  8. Oh, I'm so glad to hear things are looking up for little Lewis. We check our email and your blog often for udates. Hope you are getting rest. Thanks for sharing your story with everyone as your testimonies of faith and endurance have strengthened mine:) We love you guys and continue to pray for you all. Love ya, Carolyn

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