a lot of big things have been happening at the Pease residence. Lewis had his swallow test on Monday & he didn't pass:( he had some fluid going to the lungs when they gave him the normal liquid & a nectar liquid. he did however pass the honey consistency so we are allowed to feed him again! we have to add this gel to his milk to make it thicker so it wont go to the lungs. I'm just soo happy to be bottle feeding him again. He has been doing okay with his feeds. He gets 70 cc ever 3 hours & he will drink from a bottle about 15-35cc's then the rest we have to put in his feeding tube. Once he gets to the point he can drink all 70 every 3 hours we can pull the tube out & leave it out!! I wish he would just hurry up & drink it all so we wouldn't have to deal with both the tube & bottle feeds. i guess i need to learn patience so he is taking his sweet time with it! my goal for him is by the end of this month to have the tube out. He did however drink one whole bottle today & i thought i was going to cry i was sooo happy. he has never done that.
We saw his nurse Beth on tuesday & he had an echo. There are still a few things with his heart they will keep an eye on but for the most part it looks great! He still has the pulmonary hypertension so once that goes away we can say goodbye to the oxygen & Viagra!! they are saying once he grows it should go away. so hopefully soon. They weighed him & he now weighs 8 pounds 4 ounces! Beth said she is very happy with his weight gain & so am i. he is also 21 & 1/2 inches long.
He will start seeing a speech therapist & a physical therapist at the end of the month. The speech therapist will help me with his feeds & what not. im not sure what will go down at the physical therapists.... just one more Dr's appointment we have to go to. they sure do keep me busy!
Also Lewis finally got his voice back!! i missed his loud cry... i never thought i would say that but its so nice to be able to hear him if i go in the other room. before i kept running back & forth from room to room just to make sure he was okay since i couldn't hear him cry.. but his voice is back & loud as ever! and im thankful for that.
the cutest baby in the whole wide world!
as for Alvin & I we are adjusting pretty well to being new parents. I love to see alvin hold the baby & kiss on him. He is always telling Lewis "you are so cute" & "i love you soo much". Alvin is an amazing dad & helps out soo much with his feeding & changing diapers. He always just jumps right in to help & im soo grateful for that. He will even do a few feeding shifts during the night when he doesn't have work so i can get some good sleep. I appreciate that soo much & dont think i could make it through everything without him by my side. i always knew he was the man i was supposed to be with for eternity. I love you Alvin! Thanks for all you do for our family.
Today i had a little of a breakdown... I went to a baby shower for a friend today & while i was there i was watching all the moms with their babys there. one was breastfeeding, one was holding her sleeping baby & the other was bouncing her baby on her lap.... i hate to say it but i kinda felt sorry for myself. that i didnt have my baby there, that im not able to breastfeed & do normal things with my baby. then i felt even more sorry for Lewis. That he has to have the tube down his throat to eat. that he has to have oxygen & medicine to help him breath. i kinda thought for a second that he wasnt as happy as these other babies i was seeing. more than anything i just want him to be healthy & happy & be a normal baby. Then i remembered the words Alvin said at Lewis's baby blessing. That Lewis knew what he would have to go through before he came to our family. I quickly had a change of attitude & just thanked my heavenly father for everything we have been thru. i know it happened for a reason. it wasnt just by chance that everything happened. Lewis is still here for a reason & more than anything i am grateful for that. I wouldnt change anything. We are one of the lucky ones that still has our baby with us so how can i feel sorry for myself... things could be much worse.
I just hope i can learn all i need to learn from this experience. So that i can be a better mom & wife. i will no longer feel sorry for myself that i dont have a normal baby! my baby is special. i am grateful heavenly father has trusted me to be his mother & take care of him. i promise to do my best & be the best mom to you Lewis. you are my little miracle baby!
on to a more happier note we got a visit from my great grandpa spud. It was soo good to see him. We missed seeing grandma peggy since she was at a shower.. we hope you two know how much we love you! we wish we could see you more. Here is a picture of Lewis with his great great grandpa spud!! hopefully we will be able to get a 5 generation picture when we go up north.