Wednesday, March 4, 2009

A Long hard day...

Lewis is finally out of surgery & back with us in his room. The surgeon came & talked to us after the surgery & said it went pretty much as he expected it to go. He said to expect our baby to be very sick for a while since he had to undergo such a long exhausting surgery. These next couple days will be very crucial for him & we are just taking it hour by hour or sometimes minute by minute....
It was soo hard to see him when he came back from surgery. His chest is pretty much open with some tap over it & that was hard to take in.... They have his sternum open as well since his heart is swollen from all the work they have done on it & they will close that in a few days. So he is very swollen & that will probably get worse before it gets better. They will keep him very sedated for the next couple days so at least he wont be in any pain. He is getting alot of attention tonight & they will watch every little thing very closely tonight & tomorrow.
Lewis is such a fighter & i am soo amazed at how much strength his little body has. It is truly a miracle that he has lived this long & will be even more of a miracle if his surgery works & he makes a full recovery. We are so grateful for modern technology & medicine. 20 years ago they wouldnt have been able to help at all. We are just glad to have him. Thx everyone for your prayers. Keep them coming....

No one should ever have to see there baby like this.... it just makes my heart ache.

25 comments:

  1. My heart aches for him, you and Alvin. What a long exhausting day for you and still the days to come. I am so sorry that you all are having to go through this. He is still beautiful even with all that stuff on him.

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  2. I am Mark Wright's mom (Mark was Lewis' neighbor this weekend at St. Joe's) and someone just emailed me the link to your blog. It was good to see you guys today and I'm so glad you made it through the long day! You really are in the best place, the team there is amazing. Let me know if there is anything we can do for you!

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  3. I want you guys to know how much I admire your strength and optimism. You guys are amazing. You are right, no one should have to see their baby like this. But aren't we grateful for modern day miracles. They do exist today. I have thought of you guys this whole week, and pray for the very best for all! You have a family and wonderful community up here who love you and think of you guys! Best wishes, and lots of love, hugs and prayers! Elisa

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  4. I can't even imagine what you are going through! Your family is in our prayers! It's amazing to see the strength and courage you guys have during such a hard time. You guys are amazing. Lewis is a fighter and I pray he will continue to fight!! You know to call me if you need me for you know what...anytime..don't hesitate to call. 602.570.1089. We will continue to pray for Lewis!!!

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  5. Jessi and Alvin,

    I have been following your story from afar. Please know that your little family is in our thoughts and prayers. I remember all too well being in the hospital with our son Ryan. His situation was very different than yours, but I remember feeling like no infant should have to go through what he was going through.

    Through him though we were able to experience extreme faith, and through our faith miracles came. Our infant that went through so much is now 8 1/2 years old.

    We're praying for you and your little guy.

    Take care,

    Deni (Jessica Despain's sister)

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  6. Jesse I just wanted you to know we are praying for you family. I am so sorry that you and your family are going through all of this. It is so hard to stand by and watch your baby suffer. I can't even start to comprehend what you must be feeling. Love you and I pray you and your family can feel the Savior standing by watching over all of you.

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  7. We just want you both to know that we are praying for you and your sweet family. I know how hard it is to watch your precious baby all hooked up to wires and tubes. But you will grow from this and be stronger for it. We love you.

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  8. Jesse your little family is in our prayers and Taya prayers every night that baby Lewis's heart will get better! We sure do care about you guys and your in our thoughts constantly! I prayer that things will turn out for the best! Lots of love- Despain Family

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  9. Oh Jesse and Alvin, my heart just aches for you guys. I am so sorry that you have to see your little Lewis this way. I cant even imagine. Our prayers are with you, and we are praying for the best. Keep the updates coming...you guys are all I cant think about lately.

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  10. Oh I just started crying when I saw the pictures of Lewis. I can't imagine how it must be for you guys. It is hard to see your little guy go through so much. We love you guys and little Lewis. We pray that he will heal and be healthy.

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  11. i love you and am so sorry you are having to go thru this. i just wish i could be there to give you a big hug and kiss. i will tonight! I love you 3 and hope he has a good recovery

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  12. I just wanted to let you know that your precious baby is in our prayers.

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  13. i bet it is so difficult to see him that way. he is so tiny but i am so amazed at his strength too and yours and alvin's also. one of the times i talked to your mom before he was born she told me that one of the biggest things that she was praying for was for him to come into this world as strong as he possibly could. it's amazing how prayers are answered. thanks for keeping us updated. you guys take care and know that your family remains in our thoughts and prayers.

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  14. We just want you guys to know we are praying for you a long with lots of people who love you it sounds like. We are lucky to have the gospel in our lives so we have that assurance that everything is in the Lord's hands and he knows what he is doing! We love you guys, hang in there! Uncle Randy, Aunt Cynthia and girls

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  15. What a handsome little boy you have! I hope his recovery goes well. Your family is in our thoughts and prayers.

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  16. My heart is so very full of compassion for you. Our lives are full of unforseen trials. I do know that Heavenly Father loves you and truly feels the pain you are going through. Noone knows better than He, the pain and love you feel for this beautiful infant. I only wish I could express my innermost thoughts and heart felt concerns.

    My heart aches for you and your family and I pray for little Lewis to keep up the good fight. I am sure with all of the love and prayers....he feels the strength to fight that we can only imagine.

    My prayers and thoughts are with you. May our Heavenly Father comfort and hold you close.

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  17. You guys are so strong! I am amazed by you faith and positive attitude. We love you and are praying for you!

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  18. Oh bless you guys your amazing and Lewis is so amazing! That is so sad but I am so glad that his surgery went well. You will continue to be in our prayers.. After Savannah saw that picture she keeps running around saying heavenly father babys sick help him amen..YOu guys are amazing!

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  19. Jesse, what an adorable little guy! Please know that your family is in our prayers. We hope his recovery goes well. Your strength is amazing and testimony building. Thanks for sharing.

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  20. I was saying our family prayers this morning and Quinn was folding his arms when I said Baby Lewis, he started clapping and saying yeaaaa whoooooo! Ben and I couldnt help but wonder if he really knows, or if he feels something. Children are such a gift and a wonderful blessing. I know that the savior is with you and Alvin and Lewis. You are in our prayers and we love you so much.

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  21. Jessica and Alvin, your baby is so adorable, our love and prayers are with you and your baby.

    Yari.

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  22. I wish I could write all the feeling that I have towards your sweet little family. We sometimes have trials that we don't understand at the time but know that Heavenly Father has a plan for you and your adorable little Lewis. This experience will change you. Just know that we are praying for your family. You are all in our thoughts.

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  23. Jesse:
    I'm not one for very inspirational words...and in tender situations like this(when my heart hurts and I get so emotional) I become speachless. I'm sure there are a million + things that I could say, but all that comes out are the tears running down my cheeks and the thought that Heavenly Father will take care of your little precious man. Everything will be ok.
    Love you.

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  24. He is absolutely Beautiful Jesse! I admire your strength and your faith!! You and Alvin are great examples to us all. May the Lord bless you with the truest desires of your heart! And may the Lord bless "lil Louie" to be with amazing parents for as long as He can!

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  25. Alvin and Jessica, we are just finding out about your precious little guy. He is absolutely beautiful! Alvin, I am quite certain your son has the strength and determination of his father and he won't give up! You are all in our prayers and we are here for you if you need ANYTHING! Stay strong, love each other and GOD bless. With love, Wayne and Amy Dillon

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